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Offering support and understanding to bereaved parents of pregnancy and infant loss
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Internet Resources for: [ Families | Families Facing Difficult Decisions | Care Providers | Rememberance Jewelry & Keepsakes ] Brief Encounters is not
responsible for the content of these Web sites. Other groups and
organizations maintain these sites; some of them may not be active at
this time. If you have specific questions or concerns
about any of these sites, please contact the owner of the site directly.
If you encounter an inactive link, please let us know. If you
find a useful resource not listed here, please feel free to let us know. Families A Place to Remember ( www.aplacetoremember.com) offers resources for infant loss, including books, announcements, memory boxes, and materials for dads, grandparents, siblings and caregivers. Alive Alone ( www.alivealone.org) is for bereaved parents whose only child or all children have died. This site provides a self-help network and newsletter to promote communication and healing. Alliance of Grandparents, a Support in Tragedy (AGAST) (www.agast.org) is dedicated to helping grandparents through the trauma, stress and grief after the loss of a grandchild. Baby Steps (www.babysteps.com) is named after the baby steps that form the long and difficult road to recovery from the loss of a child. Bereaved Parents of the USA (BPUSA) ( www.bereavedparentsusa.org) offers support, care, and compassion for bereaved parents, siblings, and grandparents. Butterfly's Touch, A ( www.abutterflystouch.org) is an Oregon-based, non-profit Christian organization providing support to parents whose lives have been impacted by the heartbreaking loss of a child to early pregnancy loss, stillbirth, or newborn death. Center for Loss in Multiple Birth ( www.climb-support.org) supports parents who have experienced the death of one or more twins or higher multiples at any time from conception through birth, infancy and childhood. Centering Corporation ( www.centeringcorp.com) is a non-profit organization dedicated to providing education and resources for the bereaved, including bereaved parents and siblings. Comfort Zone Camp ( www.comfortzonecamp.org) is a nonprofit camp for siblings and children (age 7-17) coping with the loss of a sibling or parent. Dougy Center for Grieving Children (www.dougy.org) provides support in a safe place where children, teens and their families grieving a death can share their experiences as they move through their grief process. Facts About Miscarriage ( www.pregnancyloss.info) offers information and support for those experiencing or who have experienced a miscarriage. Grief Watch (www.griefwatch.com) offers spiritual, emotional and other support to persons who are grieving through bereavement resources, memorial items and links. Group B Strep Association ( www.groupbstrep.org) is dedicated to the fight against GBS infection by serving the public as a resource of information and support. Griefnet ( www.griefnet.org) offers e-mail support groups for the bereaved including parents, siblings, and grandparents. It also offers a wide variety of bereavement related content including a comprehensive resource guide of bereavement organizations and a sister Web site for bereaved children, KIDSAID (www.kidsaid.com ). Grief Recovery Online (GROWW) (www.groww.com) offers wide variety of grief and bereavement resources. Ectopic Pregnancy Trust (www.ectopic.org.uk ) was established to raise awareness of ectopic pregnancies amongst women of childbearing age, the medical profession and the general public. HELLP Syndrome ( www.hellpsyndrome.com) offers information and support on Hemolysis, Elevated Liver, Low Platelet (HELLP) Syndrome and pregnancy-induced hypertension, a condition that affects both mother and child. Hygeia (www.hygeia.org) enables the exchange of stories and thoughts on message boards and in a private, international e-mail community between those who have experienced a pregnancy loss, intrauterine death, stillborn infant, or other perinatal, neonatal and early childhood loss. INCIID (www.inciid.org) is the InterNational Council on Infertility Information Dissemination, a nonprofit organization that helps individuals and couples explore their family-building options. INCIID provides current information and immediate support regarding the diagnosis, treatment, and prevention of infertility and pregnancy loss, and offers guidance to those considering adoption or childfree lifestyles. In Mourning Band Campaign ( www.inmourningband.org) is an effort to change the way our culture mourns. The MISS Foundation, in association with the Elisabeth Kubler-Ross Foundation, has designed the "In Mourning Band â„¢," a black wristband intended to serve as an outward symbol of a person who is newly bereaved. Loss of All in Multiple Birth Support ( www.public.iastate.edu/~cjenks/lambs.html) Mommies Enduring Neonatal Death (MEND) (www.mend.org) is a Christian not-for-profit corporation whose purpose is to reach out to those who have lost a child due to miscarriage, stillbirth or early infant death through support groups, a quarterly newsletter and Web site. Mothers in Support and Sympathy (MISS) Foundation ( www.misschildren.org) is a non-profit organization providing immediate and ongoing support to grieving families and caregivers. National SHARE Office (nationalshareoffice.com/resources_caregivers.shtml) provides support to care professionals to enhance the support of parents experiencing the death of a baby during early pregnancy, at birth, or in the first few months of life. National SIDS/Infant Death Resource Center (www.sidscenter.org) provides information services and technical assistance on Sudden Infant Death Syndrome and related topics with a goal of promoting an understanding of SIDS and providing comfort to those affected by SIDS through information sharing. National Stillbirth Society ( www.stillnomore.org) works to "educate, agitate and legislate" for greater stillbirth awareness, research and reform. Nora Madelyn Fund for Infant and Child Loss ( www.noramadelyn.org) is an Oregon-based, non-profit fund that provides resources to families who have experienced pregnancy loss or the death of a child. Recognizing the emotional impact on medical professionals and caregivers who attend to these families, Nora's Fund also provides support and educational resources to assist these professionals and caregivers in their work. Now I Lay Me Down to Sleep ( www.nowilaymedowntosleep.org) Through its nationwide network of professional photographers, Now I Lay Me Down to Sleep will arrange a tasteful private sitting at the hospital with no charge for any services or pictures. Oregon Chapter of Resolve (e-mail: resolve_oregon@yahoo.com) offers information, emotional support, referrals, and advocacy for infertile couples, their families, and friends. 24-hour message line: (503) 762-0449. Perinatal Loss ( www.griefwatch.com/pl/default.htm) offers resources for bereaved individuals and the caregivers who assist them through their grief. The site and its resources are all created by, for, or in memory of someone who has gone through the process of perinatal loss or bereavement. Resolve: The National Infertility Association (www.resolve.org) provides education, advocacy and support for women and men facing infertility, including a help line, a physician referral service, and a monthly magazine. SHARE (www.shareyourstory.org) An online community for NICU Families Sidelines (www.sidelines.org) provides support and advocacy services to women with complicated pregnancies. Silent Grief ( www.silentgrief.com/) is meant to be a safe place of healing, support, and hope during a time of grief, loneliness, and depression. Includes articles, forums and other resources of Christian-based support. Subsequent Pregnancy After Loss Support (SPALS) (spals.com) is an e-mail-based support network for subsequent pregnancies and those trying to conceive subsequent pregnancies. Twinless Twins Support Group ( www.twinlesstwins.org) supports twins and other multiples who suffer from the loss of their twin through death or estrangement. is an e-mail list specifically for those who have lost all their children in a multiple birth, whether their loss is recent or years ago. Families Facing Difficult Decisions A Heartbreaking Choice ( www.aheartbreakingchoice.com) offers information and support to parents who have interrupted their pregnancies after prenatal diagnosis revealed severe fetal anomalies. Anencephaly Support Foundation ( www.asfhelp.com/asf/home) supports parents who wish to continue their pregnancies after a diagnosis of anencephaly. Carrying to Term ( www.geocities.com/tabris02/index.html) offers support to parents who choose to continue a pregnancy after a fatal diagnosis. Cystic Fibrosis Foundation (www.cff.org/home ) offers information and referrals to support groups, medical information and a newsletter. Genetic Alliance ( www.geneticalliance.org) provides educational materials and referrals to consumers regarding most birth defects and genetic disorders. National Organization of Rare Disorders ( www.rarediseases.org) provides information on rare diseases and a database of support organizations. National Down Syndrome Society (www.ndss.org) offers information and resources for parents and children with Down Syndrome. National Society of Genetic Counselors (www.nsgc.org) offers a referral service. National Tay-Sachs & Allied Diseases Association (www.ntsad.org) offers support and programs geared to families affected by Tay-Sachs Disease and over 40 other fatal degenerative genetic disorders. Perinatal Hospice ( www.perinatalhospice.org) offers support and resources to families who wish to continue their pregnancies with babies who likely will die before or shortly after birth. Spina Bifida Association (www.sbaa.org) provides information on the birth defect. Support Organization for Trisomy 18, 13 & Related Disorders (www.trisomy.org ) provides support for the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and related chromosomal disorders. Care Providers Mothers in Support and Sympathy (MISS) Foundation www.misschildren.org/pro/index.html is a non-profit organization providing immediate and ongoing support to grieving families and caregivers, including articles and workshops for doctors, nurses, and emergency responders. National SHARE Office www.nationalshareoffice.com/
provides support to care professionals through a quarterly newsletter
with up-to-date research on perinatal loss, Sharing & Caring Group
Leader Certification, seminars and presentations, and a publications
clearing house. Perinatal Loss www.griefwatch.com/pl/default.htm offers resources for bereaved individuals and the caregivers who assist them through their grief. The site and its resources are all created by, for, or in memory of someone who has gone through the process of perinatal loss or bereavement. WiSSP: Wisconsin
Stillbirth Service Program www.wisc.edu/wissp/webpage7.htm
offers resources for professionals to help to address
questions surrounding a stillbirth and thus to better serve families
who experience such a loss. Their newsletter contains medical analysis
and parents' perspectives. A list of publications for medical
professionals is available at www.wisc.edu/wissp/WB19.htm.
Other kickTrak ( http://www.babykick.com/) is a handheld device designed to help you count and keep a record of your kick counts in the later stages of your pregnancy. SHARE ( www.shareyourstory.org)An online community for parents who are experiencing a NICU hospitalization. |