Families Facing Difficult Decisions
A Heartbreaking Choice - Offers information and support to parents who have interrupted their pregnancies after prenatal diagnosis revealed severe fetal anomalies.
Cystic Fibrosis Foundation - Offers information and referrals to support groups, medical information and a newsletter.
Genetic Alliance - Provides educational materials and referrals to consumers regarding most birth defects and genetic disorders.
Poor Prenatal Diagnosis – Baby Center Community - Have you gotten unexpected results from prenatal testing? Find support here and talk about your options with others in similar situations.
Poor Prenatal Diagnosis - Dedicated to help parents decide in a time of crises how to proceed and where to turn for help and resources.
National Organization of Rare Disorders - Provides information on rare diseases and a database of support organizations.
National Down Syndrome Society - Offers information and resources for parents and children with Down Syndrome.
National Society of Genetic Counselors - Offers a referral service.
National Tay-Sachs & Allied Diseases Association - Offers support and programs geared to families affected by Tay-Sachs Disease and over 40 other fatal degenerative genetic disorders.
Perinatal Hospice - Offers support and resources to families who wish to continue their pregnancies with babies who likely will die before or shortly after birth.
Support Organization for Trisomy 18, 13 & Related Disorders - Provides support for the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and related chromosomal disorders